Cure Alveolar Soft Part Sarcoma International (iCureASPS)

OUr prayers are most definately with brittany and of course, her strong army (family) behind her.... it is very disturbing to hear this. You guys have already endured soo much, but i know u will keep your heads up, your family gives ours soooo much inspiration... your in our thoughts and prayers ...

See while i was pregnant i think it was the best i ever felt lol, of course in the later months i had the usual heat burn and back pain.... Actually i have to say my firsdt prtegnancy went alot better than my second, With Michael i was radiant and glowing, Hunter i was tired alot more.... Was just ...

i still tend to be tired lots, but i know that has alot to do with having 2 young ones under the age of 3 running around... it worries me sometimes when i get that legarthic tired feeling, but for now i am positive its just motherhood lol.... i can say tho i slept sooo much before the diagnosis ...

this is Amanda Yet again on her moms username....

Was wondering if anyone else with ASPS felt really tired all the time, or legarthy... i remember that playing a big role in my life, and was just wondering if it was just teenage hood before i was diagnosed....

Amanda here, I cant get my own account on here for some reason lol, so i thought i would use my moms.... Just thought I would post some pictures of my beautiful family, Along with an update...

I went for my scan results the beginning of february, dr Kellar of Ottawa is my oncologist... I have 2 ...

Michael John at Camp

Mommy and Michael...

Michael taking a peek at his new baby brother

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Momma (jannette minderlein) and Pappa (mike minderlein) with there 2 grandchildren (at our camp)

Lee, Amanda, Michael& Hunter

hi i am just updating all our new patients a lot the old ones know about my daughter Amanda she was diagnosed with asps in the fall of 2001 were told lots of different things in the beginning and told that my daughters life would probably be no longer than the age of 21 .. she started aggressive ...