Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Happy birthday. I Hope it's filled with non-ASPS thoughts and joy

I guess my confusion arises because I understood that Neuroblate is a LITT procedure. I don't understand why insurance is citing RFA policy. Maybe I am way off base here...

The good news here is that the surgeon, the hospital, the Neuroblate manufacturer have all agreed to donate their services ...

Brittany had one of the brain mets treated with the LITT (it is a laser based ablation not RFA) in Boston few years ago by Dr.Black
I'm kind of unclear on what the Neurablate procedure actually is. The insurance company cited their policy on "Radiofrequency Ablation of Miscellaneous Solid Tumors ...

Connie:
We are very sorry to hear about the loss. I hope all is going ok with you, and please feel free to email us or call if you would like. I can't remember if we gave you contact info, but I have PM'd our phone #s. We want to be supportive.

Take care, and keep in touch as you are able.

Josh ...

Insurance has denied the RFA that we were planning on doing. We are currently fighting this denial as well as pursuing other options. Has anyone heard about the http://www.cancercenter.com/brain-cance ... -approach/?

The most recent MRI results are back. The largest tumor is now 1.3cm, but still shows hypervascularity, so we are going with the assumption it is alive and kicking. The procedure we have planned is called "Neuroblate."

The smaller two nodules had actually shrunk by 1mm from the December scan (I ...

PS- Sorry for the hasty update, I am behind at work...I will update again when we get the results of the scan; and I hope everyone is doing well!

February update:

This update actually starts back last August when I had a brain MRI. The report reported no evidence of cancer, but continues to show the effects of a demyleniating process. There was a problem getting an appointment scheduled with the neurologist to follow up so we just did the ...

Quick update:

My last scan showed what the report called "very mild progression." The growth was mild, but still enough to extend my eligibility for the trial. The largest nodule has stabilized at 2.1 cm (from what I understand from some consensus on this forum--correct me if I'm wrong--but 2cm is ...

Thanks for the link, Yosef. How'd the bicycle race go?

ps-thanks for all you do!

It looks like this trial allows prior TKI usage. Interesting!

Hey all sorry for lack of updates. I just don't have time for this cancer crap :roll:
I am likely starting Cedir trial soon, as in next week is my last day to decide (unless this new scan extends my eligibility) I have reservations and want to wait another few months to start but am not sure that ...

Hmm..it won't let me edit my post, but that should be 0.8->1.5 cm instead of 8->1.5

8 in August to 15 in October is fast. Is it close to the chest wall?


The Aug CT was done without contrast in Coswig, so I'm not sure if that affects how big the tumor appears. These are also my own measurements, so they could be incorrect. One of the two that I think he is talking about look to ...

Not sure if this has been posted
http://mct.aacrjournals.org/content/10/12/2298.full
Maybe someone can answer this question. From the article:
Importantly, treatment with cabozantinib did not increase lung tumor burden in an experimental model of metastasis, which has been observed with ...