Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Personal Stories and Updates
ASPS patients post updates here, including tales of success :)
Subforum: Success Stories

Anonymous Patient Updates
For those who want to remain completely anonymous and provide updates without receiving feedback, or communication from others
Subforum: Chinese group news

Medical Publications
New research, clinical trial outcomes, etc.
Subforum: Other Publications

Other Clinical Trials
Trials that are open to ASPS patients.
Subforums: COMPLETED - ARQ 197 Clinical Trial, COMPLETED - Dana Farber Vaccine Clinical Trial (GVAX), Dasatinib, Alisertib, Anlotinib

Immune checkpoint inhibitors (ICI)
Trials for Anti-PD-1 or anti-PD-L1 antibodies with participating ASPS patients
Subforums: Axitinib and Pembrolizumab (Keytruda) in Miami, US, TECENTRIQ (atezolizumab) by Genentech, Pfizer's PF-06801591, Durvalumab+Tremelimumab at MDACC

TKI
Tyrosine kinase inhibitors, blocking various signaling pathways.
Subforums: Sutent (sunitinib), Pazopanib, Сabozantinib (Cometriq), Sorafenib

Chemotherapy
Traditional cytotoxic combos in ASPS
Subforum: Temozolomide (Temodar)

Immune checkpoint inhibitors ICI (PD-1 and PD-L1 targeting drugs)
Subforums: Keytruda, Opdivo, TECENTRIQ (atezolizumab), Toxicity, problems and potentiation strategies, Treatment response criteria and evaluation/scanning problems/rare cases, treatment discontinuation/re-treatment

Local treatment modalities
Compare surgery, local ablations such as RFA, cryotherapy, microwave, radiosurgery, embolization, etc
Subforums: cryoablation, Side effects/complications of the local ablations, Radiosurgery, Microwave ablation, High intensity focused ultrasound (HIFU)

Lung Metastases
Treatment of lung metastases.

Insurance Coverage
How to convince insurance providers to give you best possible care

Diet and lifestyle
Though probably have no effect on disease progression, can have a significant effect on the overall well-being of the patient