Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello,
Just wanted to post that we did start ARQ 197 trial.
So far, No side effects, counts are good, and easily administered.
We will scan in a few weeks so I will update after that time.
I will continue to keep each of you in my thoughts and prayers!!
Cindy

Update on ARQ 197
On this last scan, it seems all lung mets are stable. He maybe
able to extend the scans from 2mos to 3mos. We plan to stay the
course since he is stable and tolerating this medication so well.
He has been on ARQ since March 2009. Best wishes for all in 2010.
cindy

Dear Cindy,
What a wonderful to way to enter into the New Year with this VERY enouraging news of your dear son's continued disease stability and the strengthened Hope that this provides! I'll be holding very tight to Hope that the ARQ-197 will continue to be effective and successful for your son, and my best wishes are with him and your family for continued good news results on his next scans. Enjoy a most beautiful, happy, and healthy New Year, and keep in touch with this Board as you are able.
Sharing the great joy of your good news with special caring thoughts and continued Hope,
Bonni

Found these updates to link into Cindy and Sam's family updates
http://www.cureasps.org/forum/viewtopic ... =539#p3185
http://www.cureasps.org/forum/viewtopic ... t=15#p5167

Re: ARQ 197 Phase 2 Results in ASPS - 40% Stable x 1.5 years

Postby jcs2007 » Tue Jul 30, 2013 6:11 pm

Hello fellow ASPS family members,
I just wanted to post an update on my son who has been taking the clinical drug ARQ since march 2009 with no new mets. However, one met is not being a team player and has grown slightly so we may need to treat this spot with some other treatment but we are not sure what yet. Sam feels good and has no real side effects from the med which has been such a blessing as he was able to finish high school. Best wishes to all who are on this roller coaster.

Cindy and family,

I hope the team player issue has been resolved and Sam is enjoying life
Love to you all,
Debbie and family

Hello, just wanted to post that Sam is now off the ARQ 197 trial after being on it since 2009 due to new brain met found in his cerebellum and new lesion on the pancreas. We are saddened that this is no longer effective treatment since it had no significant side effects and was given by an oral dose. I will update the board if he tries any new systemic medication.

Cindy and Sam

So hoping to hear moving forward with your fight with pancreatic challenges

Love
Debbie and family