Heart Metastases: Detection & Treatment

[Yosef Landesman]

Discuss here metastatic alveolar soft part sarcoma in the heart and treatment options

[Karen Imm]

Hi there,
I wanted to comment on heart mets. Although, it is rare, APSP can travel to the heart. I have had 2 open heart surgeries to remove tumors. The first one was the size of a lime and the second was slightly smaller. They have had to rebuild my heart and have let it be known that they cannot do anymore heart surgeries. I have also had throacic surgery and several surgeries on my primary tumor. Currently, I have an inoperable tumor close to the heart (right hilum). I also have lung mets ( I have had several removed via surgery) but those are not the biggest concern at this point. We tried IMRT and it was helpful. The tumor has not grown since radiation ended.(Sept. 2006) In the past I have also had Interferon, Ifosfimide and Adriamyacin, along with other "chemo cocktails" and many rounds of radiation.
We just returned from TX where I was being considered for a clinical trial. However, because my inoperable tumor had not grown in recent months, I do not qualify. However, I will return on a regular basis so that when it does start to grow again, I can start the trail right away.
Thank you all for your continued support and information.
God Bless,
Karen Imm