Symptoms of Alveolar Soft Part Sarcoma

[Yosef Landesman]

ASPS may exist in the patient’s body for a long time before being diagnosed. It can grow large and push aside surrounding tissues long before causing discomfort. Therefore ASPS symptoms may either be a painless swelling or soreness caused by compressed nerves or muscles affecting the range of motion in the affected area.
Please tell us here about early signs that you experienced prior to being diagnosed with ASPS.

[janette minderlein]

this is Amanda Yet again on her moms username....

Was wondering if anyone else with ASPS felt really tired all the time, or legarthy... i remember that playing a big role in my life, and was just wondering if it was just teenage hood before i was diagnosed....

[Sherry]

I also was really tired and slept a lot before I was diagnosed. And after too...

[janette minderlein]

i still tend to be tired lots, but i know that has alot to do with having 2 young ones under the age of 3 running around... it worries me sometimes when i get that legarthic tired feeling, but for now i am positive its just motherhood lol.... i can say tho i slept sooo much before the diagnosis! weird, i wonder if everyone was like this

[Sherry]

I understand...I also have 2 under 3...they keep you busy don't they? I also noticed that while I was pregnant the cancer seemed affected by my hormones...and I had to use progesterone to keep my pregnancies.

[janette minderlein]

See while i was pregnant i think it was the best i ever felt lol, of course in the later months i had the usual heat burn and back pain.... Actually i have to say my firsdt prtegnancy went alot better than my second, With Michael i was radiant and glowing, Hunter i was tired alot more.... Was just wondering if fatigue was a side effect for this cancer, i see its not mentioned... But I would come home from school and sleep sleep sleep, i was always exhausted....I guess it effects everyone differently.... I definately have fear of ASPS coming back with a vengence... I have 2 tumors very very small, i would like to know now what they are if they are even canerous tumors... I guess there is no way to find out but wait... it kinda sucks, it feels like a time bomb.... Now having children my biggerst fear is to be sick or worse die knowing i wont be able to raise them... I just hate sitting and waiting, everyt ime i go for scans my anxiety level is definately risin....

[Amanda]

Hello
I was very sleepy on and off for about a year and in the area in my right calf that the 6cm mass was there was pain and my foot seemed to not move well when i tried to move it up and down. Other then all of this i felt better then i have in years.

Amanda

[Ivan]

I felt absolutely nothing. In fact, I felt awesome. Not sure why you would feel anything, unless it's already very advanced.

[Amanda]

Hello Ivan,
How large was your tumor? Mine was in my right calf and it did hurt it was 5.76 cm. This is how we found it and many others also sadly only find it when it hurts. So how did you find your tumor if it didnt hurt :/ I work in film so the sleepy times may have been because of that who knows. I am just glad they found it when they did! But, i also felt great

I felt absolutely nothing. In fact, I felt awesome. Not sure why you would feel anything, unless it's already very advanced.

[Ivan]

Hello Ivan,
How large was your tumor? Mine was in my right calf and it did hurt it was 5.76 cm. This is how we found it and many others also sadly only find it when it hurts. So how did you find your tumor if it didnt hurt :/ I work in film so the sleepy times may have been because of that who knows. I am just glad they found it when they did! But, i also felt great

I felt absolutely nothing. In fact, I felt awesome. Not sure why you would feel anything, unless it's already very advanced.

Well, it was a few cm by a few cm. In the arm, so it was easily visible. Anything of that size in the thigh would not be visible, of course.