Cure Alveolar Soft Part Sarcoma International (iCureASPS)

I incorrectly said the left leg when the correct leg is the right upper frontal area

Debbie

Keola Hello. My name is Debbie and I am Joshuas,( Josh) mom. Thats awesome to hear of your stability ! The joys of life that we choose to focus on to aid in keeping us upbeat in a time that could be seen as less than happy times with this disease. I am new to the clinical trial system and would like...

Brian Yes the surgical choice of rending you body of this burdening disease seems to be the first step to fighting it. We ,as a family , have called it the search and destroy. Sloan Kettering is one of our choices too. Josh and his wife NIH and Sloan Kettering before their visit to Germany. They had...

Hello Brian My name is Debbie and I am Joshuas mom. I am curious how things are going for you and yours? I don't know if you know this but Josh is also a dad of a 4 1/2 year old daughter. Next to his wife ,she is the light of his life. His primary tumor was removed in September of last year 2012 jus...

Thank you everyone for your continued special caring, strengthening support and encouragement, friendship, and invaluable sharing. Please take care, keep in touch as you are able, and know that you are all held very close in my heart and most caring thoughts.With a heartful of special happiness and...

Bonni

How is Brittany doing today? How about yourself?

Sincereley

Debbie-Joshua's mom

Ivan I believe it to of been about 5 hours plus of a surgery. My questin to you is how is the CT scan read on the lung that had surgery for pin pointing possible tumors? How long before the primary tumor ,that was removed with negative margins ,can truely be examined by scans and be deemed stable? T...

He had 77 mets removed from his left lung. One was large enough to consider surgical removal but the laser was able to get it. We feel REALLY blessed that Dr Rolle had the courage and determination to pursue his beliefs.

Dear all I would like to introduce myself. My name is Debbie and I am Joshua's mom. A quick update to Joshua's surgery. It was performed Thursday morning, Dresden time and he is currently feeling fantastic. Today by 3 he was marching in place and drawing his A B Cs in the air with his toes. My husba...