Cure Alveolar Soft Part Sarcoma International (iCureASPS)

This thread has a link to a current clinical trial

http://cureasps.org/forum/viewtopic.php?t=76

if anyone is interested

this is a clinical trial that has been purposed to us. Does anyone have any info or comments/opinions on this.

http://www.clinicaltrial.gov/ct/show/NC ... 12?order=1

I am still going through the protocal.

I have edited my original post. The scans compared the wrong CT's. I asked for a copy of the CT report as the doctor was handing it to me he noticed they compared scans from June 2005 to scans from Sept 2006. Anthony started the trial in Jan 2006 so these results don't tell us much of what we need t...

http://www.nih.gov/news/pr/aug2006/nci-31b.htm

This supposedly cured 2 melanoma patients.

To answer the questions, Anthony got the minimum 6 shots during the clinical trial. His mets grew from 2 to 4mm. Original size 8mm. Sorry, but our consultation was shortly after the CT scan so the results told us were sketchy. I will ask the doc. for a copy of the report. Anthony only has tumors in ...

Please read the update from November 16 (below) regarding Anthony's tumors. FYI Anthony did 3mnths of the vaccine trial. No negative side effects. I need to edit this because I have found out that the scans that the radiologists used for a comparison were 15mnths old. So the results are not useful ...

If you wish info on the vaccine trial several who participate hear have been through or are going through the trial in Boston. Surgery is the only proven solution so far, even if it means multiple surgeries over many years. How many total tumors does he have in the lungs? Did he have CT scans? I wou...

Howdy, I am wondering if anyone who has had a lymph node ASPS metastatsis could tell me whether or not the lymph node moves. Our doctors are examing a lymph node and state that since it moves it is probably not cancerous. I have also read that quite often ASPS is often one distinct mass instead of s...