Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Pet scans are worthless for ASPS in my humble opinion. The "innumerable" mets in Anthony's lungs did not even show up on the PET scans. Where as, they were clearly shown on the CT scan.
Scott

Elaine, I don't know if I would call it the next phase, since it could be considered a treatment by itself. The anti-CTL4a should allow his immune system to over stimulate. Since, he has an antibody against ASPS from the GVAX clinical trial, this should allow that anti-body to reproduce un-checked. ...

We will begin an anti-ctl4a blockade treatment in a couple days. So, far though the success of no growth, can only attributed to the GVAX trial and prayers.

The tumors may already be dead, but I feel this is relatively safe and will only build upon the results of the GVAX trial.

Anthony's latest CT scan shows no growth, or tumors that makes it 13mnths since his scan after the clinical trial.

His health is still good.

Does anyone know of known tumors remaining same size for this long of a period of time?

Scott

From what I understand the cost associated w/laser surgery is no different. Correct?

I would suggest also looking at the clinical trial in Boston. GVAX. My son went for this clinical trial. He had too many metastasis in his lungs to have the laser surgery so we did not have that option. So, far he has had zero growth in the 8mnths since the GVAX trial. In the 10mnths prior to the tr...

I have been talking to a friend who has similar symptoms from lung surgery. Does this treatment have a specific name, or I can I get the Dr.'s name for her.

Too many too count is what the radiologists reports say. Which is too many for any type of surgery. Data from previous vaccine trials have shown that necrosis can occur w/o shrinkage. "Pathologic assessment revealed that the coordinated activation of T lymphocytes and plasma cells resulted in d...

Size of mets when compared between May 2006 and 12 Feb 2007 = zero change. That is nine months of no growth. Although one scan in between said "possible 1mm growth". Which would mean this is possible 1mm shrinkage. No new mets found. No mets dissappeared. As a comparison, in the seven mont...

http://www.clinicaltrials.gov/ct/show/N ... 02?order=2

I just noticed this. I have not seen it mentioned anywhere so I thought I would post it.


Scott

Thanks for sharing it is appreciated.
Scott

Here's the new info I got. Sept CT scan showed slight growth compared to last CT scan from clinical trial no new mets(as far as they can tell due to # of mets). 5 month interval. Nov 8th CT scan showed no growth from Sept. CT scan. 2 month interval. Nov. 13th MRI was clear. So far the results after ...

Kate check out http://www.quackwatch.org. There might be an information about these products - some of these products does not treat cancer or any other disease, and often they do not even claim that they do - people leap to that suggestions on their own.They often state that "claims which stat...

His mets have slight growth. as far as new mets they couldn't say. Too many to tell. He has a another scan tomorrow so we will see if anything has changed.

We decided not to do this clinical trial. It was my opinion that the main agent acted mostly on fast growing cells. And, due to the slow growth rate of ASPS it was not worth the risk for us.

Olga, as far as Anthony's coughing up blood. It appears to have been only that one night.

Scott