Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dear Charity, I am so deeply sorry for your heartbreaking new mets diagnosis and for your increasing challenges and heartache in your courageous battle with this monstrous disease. I was unaware that ASPS could metastasize to the retina, but tragically, I think that we are all learning that ASPS met...

Dear Elaine, Thank you for writing to share this wonderful news! :D We all share yours and your family's very special happiness and the strengthened Hope that the miracle of complete healing has somehow occurred in dear Sean's young body. We will continue to hold you all very close in our hearts and...

Dear ASPS Community Friends, It is with profound sorrow that I learned today that ASPS patient David Chaffey recently lost his courageous ASPS battle. On behalf of my family, I would like to express our deepest sympathy to David's loving wife Jill Adams and to the rest of his dear family. David's im...

Dear Scott, Once again thank you for writing to share the results of Anthony's post Immunotherapy Vaccine scans. I agree with Olga that the very slight increase shown in the size of the lung mets could be within the margin of error for the slicing of the scan or a breath hold, and I find Anthony's r...

Dear Charity, Thank you for writing to share this information in the midst of all that you are going through. I am so deeply sorry to hear about your heartbreaking new diagnosis of breast mets. Like Olga, I urge you to have the mets treated or resected as soon as possible. If you would like to conta...

Dear Scott, Thank you for writing to clarify this. We will be anxiously waiting for the correct scan results and hoping to hear GOOD NEWS that Anthony's lung mets are disappearing and shrinking. It is extremely frustrating that the doctors made such a serious mistake in comparing the scan results, a...

Thank you for your update on Adam's post Immunotherapy Vaccine scans Eva. We are so happy and relieved that Adam appears to have stabilization of the disease with no new mets, no increased growth of his liver mets, and very little if any increased growth of his lung mets. Having no new tumors and ve...

Dear Scott, Thank you for graciously responding to the questions several of us had regarding Anthony's scan results. While we were all hoping that the scans would show disappearance or at least shrinkage of the exisitng mets, we are grateful that, as with Brittany and another Clinical Trial patient ...

Dear ASPS Community Friends, Brittany received her 12th and last Immunotherapy Vaccine Clinical Trial injection at Dana Farber on July 5th, and we just returned from our most recent trip to Boston for her post Immunotherapy Vaccine CT scans and MRI's. The VERY good news is that since beginning the V...

Dear ASPS Community members, The following is a June 7th, 2006 article published by JAMA regarding the results of a study which was done on the use of whole brain radiation and stereotactic radiation treatment for brain metastases. The article can be accessed at the following link: http://www.newswi...