Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Perhaps Dr.Littrup is not working currently? He had some serious health issues few years ago, who knows. Dr.Aoun his best apprentice and a long term assistant and a very experienced dr himself by now. We have met him during the ablations when they worked together as a team, I would not hesitate to u...

Hi again,
I am not sure about Dr. Littrup as we have not been in a contact for a long time now. His page is still listed as
https://healthcare.ascension.org/doctor ... chester-mi
have you tried their (248) 652-5325 number?

Ok, I got it, it was not the start for axitinib but rather restart of it after the break. I have to say that there is a strategy to restart the response to ICI drugs by irradiating one selected tumor. When it is dying, there is a short period when the sarcoma cells are not completely dead but the im...

As I understand the axitinib was added 3 months ago, why are you saying the treatment is the same? unless I missed something or misunderstood. When is your next C scan with the contrast to monitor the treatment K+A? are you currently on it?
Where are you located?

Miranda, Hi, Bonni is not often here. I think that out of all patients, Ivan has the most extensive experience with cryoablations. He had about 20 of them during his life with ASPS since 2003. His cryoablations were done after he already had 5 lung surgeries. Most of his lung mets were ablated compl...

Good luck with the treatments and no side effect, we are rooting for you!

what is the trial timeline for the 20% growth, does it have to happen between two consecutive scans 3 weeks apart?

One of the limitations of the clinical trials is that it usually does not allow any other treatments to the indexed lesions, and I am pretty sure that the biggest ones are going to be designated as the targeted to measure the response under the clinical trial criteria.

In my opinion you are getting the best treatment possible that is available at the moment, this is the treatment we fought for based on the available evidence so far, and is supported by all the big places in US as well. If you want you can get the free second opinion from Dr. Razak, he is the lead ...

Hi Sandra, welcome to this forum. Lets start from the most important fact. Survival with ASPS is usually much longer than 12 months and only ppl with the limited knowledge about its slow growing nature can say that. Especially since there is a treatments to try and procedures or surgeries to destroy...

Good luck with the scans and with the procedure, stay strong. I will now move your topic to the area where are the patients updates located, to keep it organized.

Surprisingly I found a very decent article that is out of there that discussed the issues of getting pregnant and immunocheckpoint inhibitors. they say - I quote: Although such a strategy could be pursued in a metastatic setting, it is better to avoid a delayed therapy initiation in favor of a ferti...

Cass, I am not sure how all of this fertility boosting treatment fits into immunotherapy treatment. Are you planning to have kids any time soon, or ever? The eggs harvesting is usually done before of the cytotoxic therapy as it can damage the fertility, but if the immunotherapy damages the ovaries i...

Cass, hi again. The war in Ukraine is stressful indeed but you should make a conscious effort to channel your anger into some positive actions, it helps. re. If Pilates activate lymph movement - its excellent as you need the immune killer cells to reach all the areas of ASPS metastases. re. If Turke...

LAPM is the laser assisted pulmonary metastasectomy. It is a hard choice. What would be the argument re. possible removing it for the tissue sample versus destroying it? I understand that as a result you will know what it was, but how would it affect the management plan? Any other actions will be un...