Cure Alveolar Soft Part Sarcoma International (iCureASPS)

There is may be a reason to treat the spinal one - that shows an Increased enhancement - could it possible invade the space between the vertebrae bones? How far is it located from the vertebrae? We have a pretty unfortunate community experience with that. As I said they would (probably) allow to tr...

Hey Jussi in which initial scan did they find the heart met? I was reading back on your posts but it didn't seem very clear which specific scan it was identified in? Can chest CT scans show heart mets?

Gotcha...needs to be painful ;)

So I guess the glute met is not as concerning due to location? I should be more concerned about the paraspinous musculature posterior to the left T8 transverse process (2-56)...

If these mets aren't painful, should I leave them alone or try to treat them?

hi guys...hope ya'll are enjoying ur summer. wanna give an update... So I'm still on anlotinib clinical trial. Can't remember which cycle I'm on but I've been on it since January. Basically I'm relatively stable...a couple mm increase in size of some lung target lesions...and some other target lesio...

Wonderful news Ivan. Let us know how the cardiac mri results are when you can.

Happy to hear you're doing well on the updated dosing :) And good luck with the surrogate process!

Great news Nhi for the stable reports! How long have u been on sutent so far? I've had lots of chest wall pain comes and goes...can last for a week or two weeks sometimes...Unfortunately I just deal with the pain since I feel like regular painkillers don't work. Vicodin does work somewhat but that's...

Great news Olga. Hope for continued success of the keytruda treatment!

Hi Debbie, Yes got my 2/7/18 scan results back. Brain MRI - all nodules are either stable or decreased a little. Chest CT scan - stable, no new lesions. Abdomen Pelvis CT - previously treated liver lesion no significant change. Note that these scans were compared to scans from 12/1/17. I started the...

Hi Bonni, Thanks for the update. So far i've been on the trial at the 4 week mark. The process is 2 weeks on drug (1pill/day), 1 week off break. Then another 2 weeks on drug, 1 week break then follow up CT scans to see progress). I'll be getting CT scans for chest & abdomen pelvis on Feb 7...so ...

Thanks for sharing your thoughts Ivan....hope the treatment is effective.

Good luck today with starting pembrolizumab. Hoping for positive results to come from it...

Jen

Thank you so much Bonni

some reading.. http://ascopubs.org/doi/abs/10.1200/JCO.2016.34.15_suppl.11005 Conclusions: Anlotinib is effective to many pathological types of soft tissue sarcoma, particularly to ASPS and SS. Overall PFR12w reached 57.23%. Meanwhile, Anlotinib is well tolerated, while pneumothorax needs to be noti...