Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Charity - why wouldn't they do a radiosurgery again on this 2 new mets? What size they are?

In the beginning - 3 years ago - when doctors were doing staging for Ivan which is basically the question if there is only primary tumour (stage 3 for ASPS) or also distant mets (stage 4), he had 2 false positive findings by the bone scan: 1. upper head of the shoulder bone was positive - ruled out ...

Charity - I actually do not know, Ivan has only had a CT with contrast for the abdomen at some point as an annual abdomen check up - his oncologist do not want to do it more frequent as she thinks that most of the liver, kidney, spleen are well seen on the lungs CT. The rest of the CT scans - lungs ...

New article announced on the PubMed (published in the Am J Clin Oncol. 2006 Aug;29(4):422-3.) Alveolar soft-part sarcoma: a cardiac metastasis as a rare site of relapse. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=16891875&query_hl...

Bonnie - I answer to you here to keep it classified. It is very good news that Ashley is stable on this combo and that her primary is showing such a high % of necrosis. ASPS is a highly vascular tumour and angiogenesis inhibitors may have an application in their treatment. As far as I know there is ...

Fermi National Accelerator Laboratory (Fermilab - which is located close to Chicago) has listed ASPS between the histologies Neutron therapy is appropriate - probably they had a success using it. This is the link to the list: http://www-bd.fnal.gov/ntf/what_is/softtissue.html and there the links to ...

I will have to post for the member who is not here anymore - it is Pamela Ham. She had whole bunch of the lymph nodes closest to the primary in her leg infected after the surgery for the primary resection and it was accidentally found that some of the resected ones were ASPS affected. I also have se...