Cure Alveolar Soft Part Sarcoma International (iCureASPS)

I can relate to your story...I was diagnosed at 13 with a lump on my left thigh. I am currently 23, married, and have 2 wonderful boys. There is hope! My first recommendation would be surgery. Remove all you can before it has a chance to grow or spread. I have a few other posts under Sherry's story ...

Would anyone be interested in a topic for herbal treatments or supplements? I know my dad started me on some supplements soon after I was diagnosed and being 14 I didn't want much to do with it and soon stopped taking all that he wanted me to. But, when I had radiation my dad suggested that I take k...

I met with my new doctor at Johns Hopkins yesterday and found out the good results of my chest CT scan. Here is what the radiologist report said: Multiple pulmonary nodules seen throughout both lungs. Left upper love nodule measures 15 x 13 mm, previously 19 x 15 mm, decreasing in size. 4mm nodule i...

I understand...I also have 2 under 3...they keep you busy don't they? I also noticed that while I was pregnant the cancer seemed affected by my hormones...and I had to use progesterone to keep my pregnancies.

I also was really tired and slept a lot before I was diagnosed. And after too...

Can you give me the information for Dr Rolle in Germany? Please e-mail it to me at angiel101@hotmail.com I'm also wondering where you live Kathy and anyone else in PA. I'm in Chambersburg and am about to go to John's Hopkins...it's a 2 hour drive rather than a 3 hour one and we can stop at my in-law...

Hey all, I wanted to give you some background info and then pick your brains for all the great info you can give me. I was diagnosed in April 1999 with ASPS in my Left thigh and metastasis in my lungs. I had 2 rounds of chemo that made it grow and then they removed the tumor from my leg. In July of ...

Hi all, I'm a 22 year old mom of one, soon to be 2 boys in September. I was diagnosed with ASPS in April of 1999. The main tumor in my left thigh was removed in June of 99 and I had lung surgery to remove some mets in July of 00. Since then everything has remained stable. My main concern now is the ...