Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi, Olga:

I am 74kg in weight.

I plan to take full dose at the first three months, if Keytruda works, then I will take half dose in order to save money.


Best,
Sam

Hi, Olga:

If I have to take some steroids for a couple of days for the brain swelling caused by radiation therapy, does it mean Keytruda won't work forever?

Or just doesn't work for a couple of days?


Best,
Sam

Hi, Olga: It has been three weeks since my heart surgery. Since my heart wasn’t damaged too much by the tumor, I am recovering pretty ok. I can walk almost like before although I lost 5% weight after the heart surgery. Yes, the 0.7cm met is the same as the 0.5cm met found earlier without contrast ag...

Hi, Olga:

Bad news that the doctor found 0.7cm met*1 + 0.2cm met*7 in my brain MRI.

I need to take Gamma Knife and Keytruda soon.

Does Keytruda work on brain mets as well?


Best,
Sam

Hi, Olga:

I'm meeting my immunotherapy doctor in 2 days.

I'd like to let him know that immunotherapy shall come right after brain met radiotherapy for my immune system to better recognize ASPS tumor in my body.

Could you please share any paper of this?

Thank you very much!


Best,
Sam

Hi, Olga： Does the following statement mean that PD-1 has better response rate and efficacy? Conclusions PD-1 or PD-L1 blockade therapy is a preferable treatment option over conventional therapy for both patients that are PD-L1 positive and PD-L1 negative. This finding suggests that PD-L1 expression...

Hi, Olga： As for the immunotherapy, now I have two choices： Atezolizumab(PD-L1) vs Keytruda (PD-1) . My insurance won't pay for either one. And I might have a chance to get Atezolizumab with 1/3 of the price of Keytruda for the next coming 2 years. But I care about the effectiveness the most. So is ...

Hi, Olga：

Yes, I plan to try Atezolizumab asap.

Unfortunately, one brain met was found yesterday (5mm in size).

Does Atezolizumab work on brain mets as well?

Best,
Sam

Hi, Olga： I talked with the pancreas surgeon, he said the spleen won't be saved at the pancreatic tumor resection surgery. So now immunotherapy has become my first option. But the doctor had me have a gene test-MSI(microsatellite instability) And the result shows that I am not MSI-High. Will it affe...

Hi, Olga: Thank you very much for the detailed explanation. Now I understand why I should make this decision whether to resect the pancreatic tail tumor very carefully (needs to preserve the spleen function) since I plan to have immunotherapy for my 5-10 small lung mets afterwards. I have a question...

2002 ：I was diagnosed ASPS about 4x3x2cm at left thigh in 2002. A surgery was taken to removed the tissue. A wide range excision surgery (16x10x2 cm) was taken to insure no tumor cells were left. After the 2nd surgery, the doctor also arranged me to take radiation therapy 30 times, with total 6,000...