Cure Alveolar Soft Part Sarcoma International (iCureASPS)

thank you all for the advises, I will see next Tuesday a surgeon so that he can send me to MRI or Ultrasound before deciding anything. According my GP as it is moving around when touching and is very close to surface should not be serious but seeing the situation i would not leave it as it is and wi...

According to me is even less than 5mm. It is not visible at all I need a sec to find it by pressing my arm I'll try to get an ultrasound these days and MRI also but I'm thinking od asking a resection regardless of the result, as according to the past and cases here none of the screening tools are th...

Hi everyone, yesterday by touching my lower arm I noticed very very small lump (if I can call it that way) on my arm. between my hand end elbow. it is not visible but if you pass over the area you can feel it. seems softer that the one I had on my back which was the primary ASPS. do you know if ther...

Hi Jussi, I can not say much as an advise but Olga, Bonnie and Debbie have shared a lot of good ones for your. I'm accompanying Bonnie in the wishes and positive thoughts for your scan on the 10th. Try to win the mental war and stay positive and strong, I know how this sounds and sometimes I can not...

Good luck Ivan

Wow Andrew I'm astonished of the result I see. This is amazing and very promising for a lot of us fighting this desease

Hello Phura, I'm very sorry for your sons diagnosis,however it is good that you have found this forum. I'm ASPS patient myself diagnosed almost 2 years ago. According what I have read till now I would not recoment doing a biopsy as that is the way rhat usually ASPS developes. Chemo has shown that is...

Hi Debbie,

I have no pain on my back now, I refered to the pain I felt 2 years ago when I first noticed the lump on my back.

Hi everyone, finally I got my written result today from my last scan 28th of September. One month later :) I did full body CT as at the time of scheduling the scans the MRI that is the one I always go, basically the best in the country was out of order and my doctor proposed to do CT with contrast a...

Great news Jussi!!Hope you are in good spirits.

Very happy to read this

Hi Bernard, My name is Martin and I'm ASPS patient my self. I see that you guys are on the right path. What actually the lytic lesions mean. What does the Chest CT say. This disease if spread most likely goes to the lungs first although there are other cases also. Are the chest clear of any mets? is...

Great news Olga,

I'm very happy that Ivan is back on his feet and recovering well. As you described this has been a very detailed surgery that they made. very thankful that we have such people and doctors.

I hope the recovery will continue well and you will travel safely home.

Olga, I'm very glad that you passed through this surgery and Dr.Walz managed to get it done without an open surgery. I understand your concerns and hope that that Ivan recovers very soon and everything will be OK. Maybe there is an option that there will be a doctor back home that could help in case...

Yes that is what they all told me.
Anyhow I talked with a woman that has a restaurant on the street and seems that they are feeding them for years. its a group of 3 that is always there

Thank you Jenhy did not ask but honestly seeing the poor knowledge here on ASPS I'm not sure how much can they tell. Anyhow I found the dog again, it is a street dog (stray) and here in Macedonia all of them have tags on the ear with a serial number. I've taken the number to the official veterinary ...