Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Thank you Olga, Bonni, Ivan for your replies Unfortunately I can confirm that the original has invaded the left pubic bone. It was for this reason this was initially thought to be an Ewing's Sarcoma of left pubis. Histology and immunohistochemistry changed the course of thought. In retrospect I can ...

Dear Bonni and Olga, This is Faisal, Naaila's husband (using her login with permission of course, lol). Naaila asked me to take a look at Bonni's post about managing the primary. Firstly, thank you both for the interest you are showing in her case and for her well-being. Being a believer, I say may ...

Dear Olga and Bonni Thank you for the response. The tumour is about 9x8x7, and I've spoken to three oncologists now who have all said that radiotherapy will be ineffective (due to the lung mets which are up to 18mm). They have scheduled me for an MRI and CT scan two months from now, so as to map the...

Hi everyone :) My name is Naaila (pronounced Ny-la . I am 21 years old (turning 22 next month). For the past few months I had been suffering from lower left back/leg pains which we thought was sciatic pain. I began regularly exercising which seemed to work for a few months. However, at the start of ...