Search found 203 matches
- Thu Aug 29, 2019 1:21 am
- Forum: Personal Stories and Updates
- Topic: Sam from Taiwan since 2002 (now 37 years old)
- Replies: 56
- Views: 17021
Re: Sam from Taiwan since 2002 (now 37 years old)
Very meticulous thoughts, Olga!
- Thu Aug 29, 2019 12:06 am
- Forum: Personal Stories and Updates
- Topic: Sam from Taiwan since 2002 (now 37 years old)
- Replies: 56
- Views: 17021
Re: Sam from Taiwan since 2002 (now 37 years old)
Hi Sam and Olga,
Steroids may not be needed if the brain swelling is not fierce and have the side effects like headache, dizzy or sick. And as to my experience and the experience of other Chinese patients, mets small like this wouldn't cause much side effects after Gama Knife.
Lynette
Steroids may not be needed if the brain swelling is not fierce and have the side effects like headache, dizzy or sick. And as to my experience and the experience of other Chinese patients, mets small like this wouldn't cause much side effects after Gama Knife.
Lynette
- Wed Aug 28, 2019 8:09 pm
- Forum: Personal Stories and Updates
- Topic: George From China - Dx 2007
- Replies: 242
- Views: 137204
Re: George From China - Dx 2007
Hi, It's really been a while since my last update! Thanks Ivan, Debbie and Olga for answering for me. George is lucky, he is doing very well since stopping Keytruda in Apr 2016, after totally 7 dose (8*100mg, 200mg at the first time). He just had the latest scans half a month ago--chest CT and head ...
- Wed Aug 28, 2019 1:15 am
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
Mikko,
I'm sorry for your lost...
Jussi is such a brave and proactive fighter. He will be missed...
I'm sorry for your lost...
Jussi is such a brave and proactive fighter. He will be missed...
- Mon Sep 03, 2018 9:36 pm
- Forum: Toxicity, problems and potentiation strategies
- Topic: A case of PD-1 targeting drugs + radiation
- Replies: 2
- Views: 2202
A case of PD-1 targeting drugs + radiation
A case of PD-1 targeting drugs + radiation of A Chinese patient. Here is the info of this case: before PD-1: lung 6cm, Liver 5+cm, pancreas 6cm Best response: Lung 0.7cm, Liver 1cm. Developed resistance to PD-1, Oct ~Dec 2017: lung 20% increase. pancreas 5cm (intensity modulated radiation therapy, 4...
- Sun Aug 12, 2018 6:15 pm
- Forum: Personal Stories and Updates
- Topic: Seth from South Korea, Dx november 2017
- Replies: 97
- Views: 34374
Re: Seth from South Korea, Dx november 2017
Yes, I know Fuda hospital. George had 2 cryoablation there. Dr. Niu is director of that hospital. They have rich experience of brachytherapy as well. If you're going to consult him, ask in what degree can the met be ablated--completely or like 70%. There was a dangerous complication in the course of...
- Fri Aug 10, 2018 1:07 am
- Forum: Personal Stories and Updates
- Topic: Seth from South Korea, Dx november 2017
- Replies: 97
- Views: 34374
Re: Seth from South Korea, Dx november 2017
Hi, George did had brachytherapy to the lung mets, but the mets were less than 2cm. If your mets are 4cm, that means it need 8 times of the seeds than the 2cm mets! So the radiactive damage is a big concern. Many Chinese patient have Cyber knife to treat the lung mets, most of them get radiation pne...
- Tue Jul 24, 2018 12:43 am
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland - Dx 2008
Hi Jussi,
I recall radiologist prescribe some kind of cream to use on the skin before radiation, but I don't know the exact name. You can ask your radiologist or dermatologist for it and prepare for how to protect the skin after radiation.
Good luck,
Lynette
I recall radiologist prescribe some kind of cream to use on the skin before radiation, but I don't know the exact name. You can ask your radiologist or dermatologist for it and prepare for how to protect the skin after radiation.
Good luck,
Lynette
- Thu Jun 07, 2018 6:49 pm
- Forum: Personal Stories and Updates
- Topic: Ivan rocking it since 2003
- Replies: 662
- Views: 273414
Re: Ivan rocking it since 2003
Such a great news! We're so happy for you!
- Wed Aug 30, 2017 6:27 pm
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland -Dx 2008
I'm so glad to hear there is no progression! Happy for you! As for the scan accuracy, it is complicated to non-professionals. I try to learn about the resolution of the MRI scan, but still not very clear about it. My concern is if the regular scans are done in high resolution (thin slide thickness a...
- Sun Jul 23, 2017 5:28 pm
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland -Dx 2008
Hi Jussi,
I'm very touched you're so brave and determined!
I wish with the success of the 2 surgeries, the doctor will be more open to the positive treatments in the future. And this will help you very much to contro the desease.
Wish you a speedy recover!
Lynette
I'm very touched you're so brave and determined!
I wish with the success of the 2 surgeries, the doctor will be more open to the positive treatments in the future. And this will help you very much to contro the desease.
Wish you a speedy recover!
Lynette
- Sun Jul 09, 2017 7:36 pm
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland -Dx 2008
Hi Jussi, Agree with you that the mandibular met must be treated soon or the problem will be harder. Have you consider Cyber Knife for the mandibular met? Seems like your treatment schedule would be very tight. The brain mets need to be treated ASAP to reduce the side effect from Gama Knife. And you...
- Fri Jul 07, 2017 12:07 am
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland -Dx 2008
Glad to know the surgery went well.
Wish you a speedy recover!
Wish you a speedy recover!
- Sun Jun 25, 2017 9:06 pm
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland -Dx 2008
Sorry to hear about the progression on the treated met.The neurosurgery must be scheduled soon, or the regrowth can be very fast--My huasband experienced regrwoth from a failed Gama Knife treated met before. The met grew from ~1.4cm to over 3cm in 2 month. I'm shocked to see "doctor already men...
- Wed May 10, 2017 7:31 pm
- Forum: Rest In Peace
- Topic: Jussi from Finland - Dx 2008 - 30.3.1991 - 23.8.2019 R.I.P.
- Replies: 845
- Views: 220265
Re: Jussi from Finland -Dx 2008
Jussi, I understand you concern and I would be very anxious in your situation. If you're determined to do the SRS, do you consider the hospital in China? China has a great polulation, so the doctors here have much experience with some radiosurgery--Gama Knife and Cyber Knife. If you're interesting, ...