Search found 10 matches

by tanya
Tue May 18, 2021 8:32 am
Forum: Guest Book
Topic: Covid - vaccination?
Replies: 5
Views: 2369

Re: Covid - vaccination?

Thank you so much Olga. This is really helpful.
🙏
by tanya
Mon May 03, 2021 2:17 am
Forum: Guest Book
Topic: Covid - vaccination?
Replies: 5
Views: 2369

Re: Covid - vaccination?

Hi Olga,

The exact same query. My son 26y is under follow ups for last 10years with no significant interval changes in nodules in his lungs.

We are in a dilemma reg the vaccine?
by tanya
Wed Jan 17, 2018 8:42 pm
Forum: Personal Stories and Updates
Topic: Ritchie from India - Dx'd May 2011
Replies: 5
Views: 3947

Re: Ritchie from India - Dx'd May 2011

Thankyou Bonni Hess .
My son is going to be 23 this July Debbie . He was 15 y 10 months at the time of surgery .

Thankyou for the information and link.
Will keep myself informed .

With best wishes and hope for everyone.
Anita
by tanya
Sat Jan 13, 2018 10:23 pm
Forum: Personal Stories and Updates
Topic: Ritchie from India - Dx'd May 2011
Replies: 5
Views: 3947

Re: Ritchie from India - Dx'd May 2011

Hello Olga ,

Thankyou for this valuable information . It will be of great help to me.


Gratitude,
Anita
by tanya
Sat Jan 13, 2018 8:43 pm
Forum: Lung Metastases
Topic: Can asps recur at a different location?
Replies: 6
Views: 4176

Re: Can asps recur at a different location?

Hello all, This is an amazing group . Debbie the info you shared is an eye opener. Doctors here never suggested a bone scan. And I am going to reconsider the muscle pain in my son's thigh . Bonni read it and am so happy that your daughter is doing good with cediranib. Doctor has not given it a go fo...
by tanya
Sat Jan 13, 2018 8:23 pm
Forum: Personal Stories and Updates
Topic: Ritchie from India - Dx'd May 2011
Replies: 5
Views: 3947

Ritchie from India - Dx'd May 2011

Hello everyone , My son was Dx'd in May 2011 for ASPS . The tumor was with his abdominal wall in the lower part of the rectus . It was surgically removed with good margins in May 2011. It was 4x5x3.5cm. Yes it was pathalogically tested . It had occasional mitosis and Mib labelling index <2% . Resect...
by tanya
Fri Jan 12, 2018 9:03 pm
Forum: Lung Metastases
Topic: Can asps recur at a different location?
Replies: 6
Views: 4176

Re: Can asps recur at a different location?

Hello Debbie Yes the tumor was surgically removed with good margins in 2011. It was 4x5x3.5cm. Yes it was pathalogically tested . It had occasional mitosis and Mib labelling index <2% . Resected margins were free of tumor. We had got PET done before the surgery and after a year . No other part had s...
by tanya
Fri Jan 12, 2018 8:45 pm
Forum: Personal Stories and Updates
Topic: Mark from Toronto - Dx 1988 at 18 yo (46 now)
Replies: 15
Views: 11932

Re: Mark from Toronto - Dx 1988 at 18 yo (46 now)

Hi Mark and all, This is Anita from India . My son was diagnosed with ASPS with his abdominal muscle in 2011. He was all of 16 then. He has multiple subcentimetric nodules in both his lungfields not sure to be mets . They have reduced in size and number in last two scans and is veing evaluated on ye...
by tanya
Fri Jan 12, 2018 4:52 am
Forum: Lung Metastases
Topic: Can asps recur at a different location?
Replies: 6
Views: 4176

Can asps recur at a different location?

Hello everyone ,
My son had asps with his abdominal wall which was removed . He has pain in his thigh since last 15 days , cant see a swelling or lump ?
Can asps recur in different location ?

Best Wishes

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