Cure Alveolar Soft Part Sarcoma International (iCureASPS)

ASCO 2013 Abstract，Sarcoma

Yes, to participate in clinical trials the biggest disadvantage is , most clinical trials are the dose climbing test. according to draw lots to decide patient into which group. For example: pazopanib+SAHA clinical trials. Starting doses: Pazopanib 400 mg orally daily and Vorinostat 100 mg orally dai...

It is the best New Year's present ！

Happy Happy new year ！

Dear Olga, I'm so very sorry to hear about this. yes,as you have guessed, I think that the met was not completely inactivated cryoablation in April last year，it should be because met near the heart, fast flowing blood make frozen region warms up quickly, resulting in the so-called " heat effect...

Yes, cediranib made Elisa and Brittany's continued and long term disease stability , like a ray of dawn in the dark , give all ASPS patients with hope! Thank you Elisa and Johannes！thank you Brittany and Bonni！ your long-term up-to-date posting for me and other ASPS patients is Extremely valuable.

Sarcoma. 2012; 2012: 626094. Published online 2012 June 3. doi: 10.1155/2012/626094PMCID: PMC3372278 Targeted Therapies in Sarcomas: Challenging the Challenge Abstract Sarcomas are a heterogeneous group of mesenchymal malignancies that very often lead to death. Nowadays, chemotherapy is the only ava...

SarcomaVolume 2012 (2012), Article ID 907179, 6 pagesdoi:10.1155/2012/907179Clinical Study Alveolar Soft Part Sarcoma: A Single-Center 26-Patient Case Series and Review of the Literature Koichi Ogura,1,2 Yasuo Beppu,1 Hirokazu Chuman,1 Akihiko Yoshida,3 Noboru Yamamoto,4 Minako Sumi,5 Hirotaka Kawan...

Oh, it's great to hear that！Ivan， You are the hero of our ASPS community!

Usually, prolonged time cough is due to lung inflammation in patient with lung lesions. you can do X ray chest film examination and routine blood test, to determine if there is a presence of the pulmonary infection and whether to use antibiotics.

Safety and Efficacy of Cryoablation for the Palliation of Painful Bone Metastases
This study is currently recruiting participants.
Verified April 2012 by Galil Medical
First Received on October 25, 2011. Last Updated on April 20, 2012
http://clinicaltrials.gov/ct2/show/NCT01461265

Recently，3 new clinical trials open for ASPS patients : 1.Crizotinib, phase II，200-250mg Bid，January 24, 2012, Not yet recruiting http://clinicaltrials.gov/ct2/show/NCT01524926?term=Alveolar+Soft+Part+Sarcoma&rank=6 2. Gemcitabine plus Pazopanib, phase II, February 6, 2012. Recruiting http://cli...

Yes，“FDA committee members said they were willing to consider treatments shown in clinical trials to be only marginally effective because the disease is so aggressive and alternative treatments so few.” According to a Nature review report,Pazopanib on synovial sarcoma with high efficiency. The most ...

FDA Panel Backs Pazopanib for Sarcoma BY ELIZABEtH MECHCATIE | 2012-03-20 SILVER SPRING, MARYLAND (EGMN) – A U.S. Food and Drug Administration advisory panel supports approval of the angiogenesis inhibitor pazopanib as a treatment for advanced soft-tissue sarcoma, despite some concerns about the deg...

Bonni,
Thank you to Let us know you so heartbreaking story. Thank you let us not Fall into a rut !

A case study of metastatic Xp11.2 translocation renal cell carcinoma effectively treated with sunitinib. Numakura K, Tsuchiya N, Yuasa T, Saito M, Obara T, Tsuruta H, Narita S, Horikawa Y, Satoh S, Habuchi T. Department of Urology, Akita University Graduate School of Medicine, 1-1-1 Hondo, Akita, 01...