Cure Alveolar Soft Part Sarcoma International (iCureASPS)

I communicate with at least 5 other ASPS ladies who do not post on here. There is a reason for this. You guys need to remember that everyone's body is different and reacts differently to this disease. Coming down on people for what they do for treatment is irresponsible. I will get my advice from on...

Jordanne, I am also on Facebook if you want to be friends! I have my full name on there- LCMA Gena, if you want to search & add me

Fantastic news Bonnie, so happy for your entire family and especially Brittany

Mania, hold tight. Cediranib is looking pretty promising from things I have read. I will pray and hope right along with you. How does Paula feel physically? Any pain? Thanks for the update and hope to hear from you soon.

LCMA

I know this is kind of a stupid question and I could find the answer myself with some reading...(sorry in a time crunch!) but is Cediranib in phase 2 still?

LCMA

That is fantastic, Brittany is a tough girl! I can relate to the chronic diarrhea Is Brittany on facebook?

LCMA

I developed a resistance to Sutent also, after 2 years. I just started Nexavar, but I would also consider Cederanib if things don't go well with my new drug. I hope you can get in on the trial. This is strictly my personal opinion, but I would not do the chest radiation...as my doctor has always str...

Happy for you that no METS were found. I'm sure Brittany is very relieved as well. I hope they find something to soothe that nasty chest pain soon!!

LCMA