Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Thank you all for your promp replies. You've all given me a lot of things to think about and some good questions to ask my protocol folks, susgeons and oncologis. I'm still on 30 mg and I'm still wrestling with the idea of lowing my dose. I'll be at the NIH on monday and hopfully they can address so...

Hi everyone Next Monday I start my 8th cycle on cediranib. My most recent CT scan showed basically no change since my last scan. My last scan basically confirmed the partial response I had in December. Dr Spinoza said there is a small amount of shrinking but it was very little. The most concerning m...

Sory about the late update. All I can say is that not much has changed since my last update. My partial responce was confirmed by my lates ct but I do not have the exact details rite now since I've moved last week. I still havent unpacked and sorted everything out. I have another CT and PET coming u...

Thanks Bonni My participation in the trial has not been affected because of the complications of other participants. Everything is going as scheduled and I have a CT scan this coming tuesday to confirm my 40% partial response. As far as meeting any asps patients, I have not. I'm usualy the first per...

Hi all My apologies for not updating my thread but I’ve been very busy of late. I have a lot of new information to share with you guys hopefully some of you will find it helpful. Update: In my last update I told you that Dr Chow had allowed me to stay on the R1507 trial even after it was scheduled t...

Hi Amanda I hope your up coming surgery goes/went well, best of luck. Update: 6-11-09 was the scheduled end date of my clinical trial but Dr Chow (city of hope) has allowed me to stay on the trial until I either have surgery or seek another treatment. I’m currently in the process of doing the work u...

Thanks 'F'

My R1507 trial will end in about two weeks. I'll still have to do another PET and regular CT to see how things went. I'll post the results here when I get them.

Greetings! Here’s my history: Diagnosed in July 2001 with ASPS primary right thigh (about 6.5 cm diameter), successfully resected Nov 2001. 2 cycles of MAID chemo prior to resection, then surgery followed by brachytherapy for 50 hours, another chemo, and month-long regimen of external beam (treatmen...