Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Debbie, My given name is Theresa. I was named after my Grandma who recently died from Alzheimer and recurring Breast cancer. She was an incredible woman who helped start a camp in Missouri for children who are or have struggled with cancer. It is called Camp Quality. The endometriosis is separate fr...

Hello Debbie, My scans have been consistently clear of ASPS. I had endometriosis travel to my scar site in my leg and some kind of embolism type thing in my left lower lung. There haven't been any other developments and I was told right before graduation last year that I was officially in remission....

Yes, I can see that as a problem. While a member of BYUs Cancer Awareness Group I learned that they created a robotic pill of types that can deliver chemo to a certain location. I know it is still in development but it does give hope that lactate suppression might be able to be targeted at just the ...

I thought more Stage 3. I just didn't get a consensus. Is it only stage 4 if it has spread? Did your husband eventually talk to you about it?

About 5 months before finding the tumor my leg felt knotted up and tired after exercise. In January 2008 while beginning workout my leg was cramping hard during workouts and I was very tired. The fatigue had been going on for a while, but I kept pushing through it to get healthy. The cramping was th...

Sorry I didn't post more detail. I have updated it. I have been so nervous about reaching out. I feel like I had to go through the experience in silence. My husband has never talked about it with me. He shuts down when things get rough.

In 2008, during my husband's second deployment to Iraq I had been working out with a personal trainer. My leg kept cramping really hard. At first it was just when I would do squats. Soon it began to cramp even when I would just use the treadmill. My trainer suggested I see a doctor. I scheduled the ...

This study was an exciting read and I can't wait as studies continue into how lactate feeds the tumor. When I found my cancer it was because I had been working out hard with a personal trainer. My left thigh began to cramp every day we exercised. I tried eating lots of bananas and drowning myself wi...