Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Did I Do enough? Did I research enough Did I spend enough Did I give enough time You are gone But once were mine Lord give me the serenity to accept the thing I cannot change Could I have changed this? The courage to change the things I can Was my courage not enough? And the wisdom to know the diff...

It is with a heavy heart, that I inform all of you that Anthony passed in his sleep on June 18th in Colorado Springs, CO. at the age of 23.

Our family thanks all of you who have been so gracious in your support of us and your efforts to find a cure.

Sincerely,
Scott Olsen

Is this trial still accepting patients?

For everyones info ipiliumiab is FDA approved for the treatment of melanoma as Yervoy.

I would encourage research into this since melanoma and ASPS have many commanalities.

Update: Long time no write, Anthony is still alive and kickin. He has switched to a doc in Colorado who of course knows nothing about this cancer. Doc says slight growth in tumors but Anthony did not get the report so I don't know by how much. Anyhow, I noticed that there has been a lot of news abou...

Anthony's tumors have started growing again. The largest has grown 5mm in three months. 1.9cm to 2.4cm.

I am sorry. I seem to be at a loss for more words.

When you say DFCI are you also including Boston Children's Hospital in that analysis? Anthony's surgeon was the Chief of Surgery at the children's hospital. Is it just the luck of the draw which surgeon they assign?

I realize you were not impressed with the surgeon Dana Farber recommended you to, but since they recommended you to a surgeon I do not understand the "the Dana Farber philosophy of don't operate unless you really have to." Dr. Goldberg also recommended my son have surgery on his primary. Y...

kstull I have sent you a private message with Dr. Goldberg's contact info. He used to be at Dana Farber. He usually responds quickly to email. He is an expert on ASPS.

Just the chest CT and bone scan this time. He has had abdominal scans w/in the last year. We have no plans for further treatment. The lung mets are too numerous for surgery/radiation. I am loathe to start something which might damage his immune system or have other known/unknown side effects since t...

Sure Ivan, visit Oregon and you don't even stop by to argue politics w/me. I see how you are.
Did you hit the coast for some nice cold Oregon surf?

It has been approximately 32mnths since Anthony started the clinical trial. He had his latest CT scans and bone scans done on the 15th. :D The results are stable disease. We were told it looks like some grew a little and some shrunk a little. Which to me means probably no change just how the slices ...

I get an error when trying to view this thread that says I do not have permissions.

Over the next 45 years, until the end of Coley's medical career in 1936, thousands of patients were treated with Coley's toxin. Coley gained extensive experience in the treatment of a large variety of malignant diseases, including soft tissue sarcomas, lymphomas, osteosarcomas, Ewing's sarcomas, and...

Contributing to the discussion of why mets may stabilize after surgery. I read a recent article on general anesthetics causing more pain after surgery. The article It basically said that some general anesthetics cause an imflamatory response while others do not. This response leads to more pain/swel...