Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dear Beth,
I am so sorry to hear about Jonny's death. These are hard times for the ASPS community, but you are right, we must continue the search for a cure for the dear loved ones still fighting ASPS.
My sympathy to you and your family.
Best,
Eva Mitchell

Thank you 'F' and Beth. We miss Adam. He truly believed that a cure for ASPS will happen. I do, too. Best to you and your families.

Dear ASPS Community: My dear nephew, Adam Beatty, passed away on July 26, 2009, from complications of the Alveolar Soft Part Sarcoma that he had been fighting for over 7 years. Adam participated in many trials, surgical procedures, and various radiation techniques during his steady fight with the ca...

All- We just found out today that the insurance has denied Adam's Gamma Knife proceudre set for tomorrow morning. They denied it because he has -- systemic disease outside of the brain. Help! Does anyone have a suggetion for us? Please email me directly at mitche@seattleu.edu We are frantic right no...

I just want to share that I have been unsuccessful getting into this forum on my Internet Explorer browser, and I just downloaded Firefox and was then able to access the forum. I kept thinking that it was my computer keeping me out, but, clearly, it was whatever rendition of IE I was using. If anyon...

After several months of stability, we found out this week that Adam has 5 brain mets. They are small, but the doc has said that they must be treated. Adam is going to have gamma knife radiation on Tuesday at Harborview Hospital in Seattle. He had this on a met about 2 years ago, and it was effective...

Adam's last ct and mri showed minimal and probably no growth of the mets in his lungs. The mets in the liver are stable. The brain met (which was treated with Gamma Knife radiaiton at Harborview Medical Center in Seattle), appears to be necrotic. In spite of the liver tumors remaining stable, Adam i...