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Guest Book
Greetings and general communication. If you are new, introduce yourself here! ;) - 10 Topics
- 157 Posts
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Re: Music . Love Debbie
by D.ap View the latest post
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Forum Issues and Suggestions
Suggestions, and any technical issues you are having with our forums - 30 Topics
- 76 Posts
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Re: Health Care and Alveolar …
by D.ap View the latest post
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Personal Stories and Updates
ASPS patients post updates here, including tales of success :)
Subforum: Success Stories - 177 Topics
- 8820 Posts
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Re: Alex from California - Dx…
by D.ap View the latest post
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Anonymous Patient Updates
For those who want to remain completely anonymous and provide updates without receiving feedback, or communication from others
Subforum: Chinese group news - 2 Topics
- 3 Posts
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Re: Brian Kennedy
by Olga View the latest post
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- 754 Topics
- 1686 Posts
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Re: Alveolar soft-part sarcom…
by D.ap View the latest post
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Sarcoma Meetings and Conferences
Latest academic material presented - 21 Topics
- 56 Posts
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Re: Breelyn answering questio…
by D.ap View the latest post
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Other Clinical Trials
Trials that are open to ASPS patients.
Subforums: COMPLETED - ARQ 197 Clinical Trial, COMPLETED - Dana Farber Vaccine Clinical Trial (GVAX), Dasatinib, Alisertib, Anlotinib - 106 Topics
- 1308 Posts
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Re: Brittany on Cediranib tri…
by jcs2007 View the latest post
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Immune checkpoint inhibitors (ICI)
Trials for Anti-PD-1 or anti-PD-L1 antibodies with participating ASPS patients
Subforums: Axitinib and Pembrolizumab (Keytruda) in Miami, US, TECENTRIQ (atezolizumab) by Genentech, Pfizer's PF-06801591, Durvalumab+Tremelimumab at MDACC - 20 Topics
- 68 Posts
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Trial Results Confirm Effecti…
by D.ap View the latest post
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Symptoms
Signs of ASPS. - 5 Topics
- 30 Posts
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Re: Symptoms of Alveolar Soft…
by D.ap View the latest post
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Scan Types and Follow-Up
Limitations of scans and their usefullness. Follow-up schedules. - 19 Topics
- 39 Posts
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Typical MRI findings are revi…
by Olga View the latest post
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Molecular Studies
Molecular Studies of Tumor Samples - 7 Topics
- 20 Posts
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Re: Molecular studies in asps…
by D.ap View the latest post
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Pathology results
Discuss your pathology results here - 2 Topics
- 21 Posts
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Re: Pathology reports of ASP…
by D.ap View the latest post
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Resection
Surgery to remove the primary tumor. - 4 Topics
- 10 Posts
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Re: article supporting primar…
by Olga View the latest post
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Treatment of Non-Resectable Primary Tumor
Treatments when surgery with negative margins is not possible. - 2 Topics
- 10 Posts
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Re: Get a Second Surgical Opi…
by Ivan View the latest post
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Radiation
Treatment with conventional low radiation before and after surgery. - 7 Topics
- 9 Posts
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Radiation exposure an N-Acety…
by Amanda View the latest post
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TKI
Tyrosine kinase inhibitors, blocking various signaling pathways.
Subforums: Sutent (sunitinib), Pazopanib, Сabozantinib (Cometriq), Sorafenib - 75 Topics
- 384 Posts
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Clinically relevant drug inte…
by D.ap View the latest post
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- 18 Topics
- 98 Posts
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Re: Different Types of Chemo…
by D.ap View the latest post
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Side effects of systemic treatments
Side effects, drug interactions, possible use of complimentary and alternative therapy during the treatment, etc. - 22 Topics
- 47 Posts
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Re: Gastric acid suppressants…
by D.ap View the latest post
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Interferon alpha
Some cases description and a general discussion - 2 Topics
- 7 Posts
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Re: Need info on side effects…
by Bonni Hess View the latest post
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- 71 Topics
- 456 Posts
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Re: Keytruda in Canada - Max …
by Olga View the latest post
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Local treatment modalities
Compare surgery, local ablations such as RFA, cryotherapy, microwave, radiosurgery, embolization, etc
Subforums: cryoablation, Side effects/complications of the local ablations, Radiosurgery, Microwave ablation, High intensity focused ultrasound (HIFU) - 33 Topics
- 96 Posts
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Re: Immunotherapy Plus Cryoth…
by D.ap View the latest post
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Lung Metastases
Treatment of lung metastases. - 46 Topics
- 261 Posts
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Re: Lung: Cryoablation
by Olga View the latest post
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Brain Metastases
Treatment of brain metastases. - 28 Topics
- 117 Posts
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Re: Scientists identify prote…
by D.ap View the latest post
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Bone Metastases
Treatment of bone metastases. - 15 Topics
- 23 Posts
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Bone Metastasis and Immune Ch…
by D.ap View the latest post
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Other Metastases
Treatment of metastases in other locations. - 15 Topics
- 57 Posts
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Re: Alveolar Soft Part Sarcom…
by D.ap View the latest post
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Abdominal Metastases
Treatment of abdominal metastases other than liver - 3 Topics
- 4 Posts
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Small intestine
by Olga View the latest post
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Liver metastases
Treatment of liver metastases - 14 Topics
- 32 Posts
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Liver immunology and its role…
by D.ap View the latest post
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Heart Metastases
Treatment of heart metastases. - 8 Topics
- 30 Posts
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Re: Symptoms of heart metasti…
by Olga View the latest post
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- 4 Topics
- 10 Posts
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Management of metastatic spin…
by D.ap View the latest post
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- 2 Topics
- 9 Posts
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Minimally invasive surgery fo…
by Olga View the latest post
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- 3 Topics
- 50 Posts
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Re: Personal experience with …
by jcs2007 View the latest post
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Insurance Coverage
How to convince insurance providers to give you best possible care - 9 Topics
- 23 Posts
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Re: Insurance Denial - Gamma …
by D.ap View the latest post
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Finanical assistance
No money? No problem! (Just kidding) - 10 Topics
- 13 Posts
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When out of network care can …
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Diet and lifestyle
Though probably have no effect on disease progression, can have a significant effect on the overall well-being of the patient - 63 Topics
- 231 Posts
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Re: Tackling the Conundrum of…
by D.ap View the latest post
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Pain management
Articles and personal experiences related to pain management techniques - 9 Topics
- 17 Posts
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Intrathecal betamethasone for…
by Olga View the latest post
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- 5 Topics
- 8 Posts
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Re: Germany Frankfurt/Main
by Olga View the latest post
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