Our new organization aims to bring together ASPS patients, their families and friends who have a shared interest to find a cure for Alveolar Soft Part Sarcoma (ASPS). On this website you will find updated information about research and therapies for ASPS. You will get a chance to share your experience and information about your disease and your treatments with the ASPS community all over the world. Using the Forum on this website you will get the option to ask questions that will help you to make decisions regarding treatments of your ASPS. We are here to support you, your family, and friends. The network generated by communicating with patients and families all over the world helps us unite and learn more about this very rare disease and is key to the success of finding a cure.
The active Board members of Cure Alveolar Soft Part Sarcoma International are four members each with loved ones struggling with this disease.
Let me please introduce our board members:
Patient and Family Worldwide Support and Outreach Director – Ms. Bonni Hess (WA, USA)
Bonni is very well rooted inside the ASPS community. While serving on the Board of TAAASPS she devoted her time, energy, and passion to provide information, help, support and encouragement to ASPS patients, family members, and their caring friends. Bonni also worked closely with her husband Jim, and several family members, to proudly raise large sums towards the opening of the future Cancer Vaccine Trial at the Memorial Sloan Kettering Cancer Center in NY. Bonni continually encouraged everyone in the ASPS Community to more actively participate in the TAAASPS organization, the Web site, and vitally important fundraising endeavors.
Treasurer and Legal Affairs Director – Ms. Eva Mitchell (WA, USA)
Eva and her family are very involved members in the ASPS community. Eva also worked closely with her sister Carla Stratford, while she was on the Board of TAAASPS and together they also collected funds dedicated to the opening in the future of a Cancer Vaccine Trial at the Memorial Sloan Kettering Cancer Center in NY.
Clinical Therapy and Information Resource Director – Ms. Olga Tkatcheva, BSc (BC, Canada)
Olga is well-known in the ASPS community. Her very bright comments regarding current treatments for ASPS were very helpful to many of us during our struggle with ASPS. In addition, her relentless searches in the scientific literature have improved the knowledge of ASPS treatment options and added many original ideas that have become a strong tool in our fight for a cure.
President and Cancer Research Director – Yosef Landesman, PhD (MA, USA)
While serving as the Cancer Research Director on the Board of TAAASPS, I made the contact with two world-class laboratories at the Dana Farber Cancer Institute who started research programs on Alveolar Soft Part Sarcoma. Those successful ongoing studies led to the current first ever ASPS-specific Cancer Vaccine Clinical Trial. Additional clinical trials for our community may be offered at the Dana-Farber in the future. As a member in TAAASPS, I was part of the ongoing scientific interactions with the team at the Memorial Sloan Kettering in New York towards the preparation of the ASPS Peptide Cancer Vaccine. I personally mediated the shipment of fresh and preserved ASPS tumors from patients for preclinical studies and research at the Dana-Farber Cancer Institute, and in the laboratory of Dr. David Vistica in the National Cancer Institute. In addition, I managed the TAAASPS website and made sure that this site contains updated scientific information regarding ASPS research and treatment options. And last, but not least, during the last three years, our PMC bike ride team of the Boston area has been raising funds to sponsor the Dana-Farber Cancer Institute efforts towards the above-mentioned ongoing Clinical Trial and Research Activities.
Please surf our website and send us your comments. Use this website and learn about your disease. ASPS is a very rare disease and very limited funds are currently dedicated to find a cure for it. However, if we share our resources and work together, we will reach our goal: Cure ASPS!__________________________
Yosef Landesman, Ph.D.
President & Cancer Research Director
Cure Alveolar Soft Part Sarcoma International (iCureASPS)